What place do “saviour siblings” have in paediatric transplantation: establishing the role of pre-implantation genetic diagnosis with HLA typing Background: Not all children in need of a haematopoietic stem cell transplant have a suitable relative or unrelated donor available. Recently, in vitro fertilization (IVF) with pre-implantation genetic diagnosis (PGD) for human leukocyte antigen (HLA)…
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Via BBC News – Should baby be risked for sister?
Should baby be risked for sister? By Vivienne Parry Radio 4’s Inside the Ethics Committee Catherine is a little girl condemned by genetic disease to a gruelling regime of treatment. She could be released from it by a sibling, but the sibling is not yet conceived. And can one child’s health ever be put…
Scientists report a breakthrough in stem cell production
Boston Globe
Cells from humans grow blood vessels in mice: study
WASHINGTON (Reuters) – Cells taken from human bone marrow, blood and umbilical cords grew into functioning blood vessels in mice with just the right coaxing, U.S. researchers reported on Saturday. The so-called progenitor cells teamed up to form working blood vessels that connected to the circulatory systems of the mice, the team at Harvard Medical…
Rhys is home!
Bubble wrapped boy returns home Jul 13, 2008 by Nathan Bevan, Wales On Sunday HE looks like any other seven-year-old with a happy-go-lucky gap-toothed grin. But Rhys Harris, from Newbridge, has a special reason for such a big smile. He’s back home in Wales safe and well after almost a year away battling a rare…
PGD for breast cancer via TimesOnline
Baby to be born free of breast cancer after embryo screening Sarah-Kate Templeton, Health Editor A woman has conceived Britain’s first baby guaranteed to be free from hereditary breast cancer. Doctors screened out from the woman’s embryos an inherited gene that would have left the baby with a greater than 50% chance of developing the…
Well: What Your Doctor Really Thinks via NYT
Well: What Your Doctor Really Thinks By Tara Parker-Pope Published: June 25, 2008 Doctors share their frustrations and insights about the health care system.
Mary Kaye Richter Speaks at Launch of Mexican Association of Ectodermal Dysplasias
Mary Kaye Richter Speaks at Launch of Mexican Association of Ectodermal Dysplasias NFED’s executive director, Mary K. Richter, spoke at the launch of Mexican Association of Ectodermal Dysplasias “Mariana” (Asociacion Mexicana de Displasia Ectodermica) on April 30th in Toluca, Mexico. She wished the organization well and gave some advice to Karla Carmona Prantl who founded…
Boy in the bubble can play in the park again
Boy in the bubble can play in the park again Jun 12 2008 by Abbie Wightwick, South Wales Echo He couldn’t even have a hug from his mum for fear of infection, but after a lifesaving bone marrow transplant at Newcastle General Hospital little Rhys Harris is on the mend. Abbie Wightwick finds the family is now…
Finding NEMO’s Happy Ending
04 June 2008 Finding NEMO’s Happy Ending A young boy has reputedly become the first child in the UK to be cured of a rare genetic illness. Rhys Harris, 7, from Newbridge, south Wales, has survived treatment, which has given him a new immune system. Rhys had to endure living in a ‘plastic bubble’ – which ensured…