Dear Charlotte and Roy, We want to express our heartfelt sympathy. May the love of family and friends comfort you. Paulina & I wanted you to know that we are grieving with you and thinking of you always. Jack’s battle against the NEMO primary immune deficiency has inspired many and will inspire many more. We…
Blog
Prayers for Jack
Please say a prayer for Jack. Jack had his first transplant a year ago. More about Jack’s story here and here. This from Jack’s mom blog last Saturday: He is still having breathing problems and is still on oxygen. This pneumonia is really kicking his butt. The doctors have been giving him doses of Albumin…
Pictures – Victor 10K race Mexico City
www.vic4andy.com
Message from Mark Porter
Good morning lads hope all is well after your 21 miles yesterday i completed it and it was a lot easier than i had expected or should i say that it was not easy but it was not as difficult as i had feared being that i have had a bad year training for this…
Pictures from CBS News interview
21 miles!
Thirty five times around the sun and this is the first time that I run (and also walk for a little while) for 21 miles. Twenty one miles. T w e n t y o n e m i l e s ! Unbelievable. Thats 33.79 km. Thirty three point seventy nine kilometers. I managed…
The Three Amigos
Simon still vomiting
This from Simon’s mom: We thank God everyday for the engraftment of 99% and keep praying it holds strong and steady. We had some of Simons vomitting issues come on strong the last two days with vomitting to the point of dry gagging while I hold him over the sink first thing in the morning….
JT no fever
We’re hoping for no fevers for JT and the calcium issue to resolve soon. This from cure4treebeard.org: Tomorrow is another big day. We need for JT to tolerate his feeds and be completely fever-free. We also need the calcium numbers to stay down on their own. If all of that happens, we may possibly be…
Jack @ day +309 back in the hospital with pneumonia
This from Jack’s Mom blog: Jack has pneumonia. This is not a result of the transplant however his medication is suppressing his immune system and that could be part of the reason why the cough ended up in pneumonia. Because of the snow storm on Friday Jack was unable to be transported down here to…