Conner Smith is at day 21 post transplant, he is 13 years 3 months old and he had NEMO deficiency.
This from his parents blog:
This morning Conner said, “BMTs suck eggs, but it will be worth it… I guess.” Needless to say, Conner isn’t feeling like his normal perky self. He had a very rough night and even vomited up his NG tube again.
More via www.cure4conner.org