What is NEMO?By Jordan Orange, MD, PhD Mutation of the gene called NEMO can be a serious cause of primary immunodefi ciency. NEMO stands for the “nuclear factor of kappa light polypeptide gene enhancer in B cells essential modulator.” It is more commonly called the “NF- B essential modulator”, or just “NEMO.” Although the…
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IDF Newsletter – Who is Jack
WHO IS JACK? By Roy and Charlotte Hagelin At the 2007 IDF National Conference, when Carol Ann Demaret and Dr. Jordan Orange dedicated their comments to the memory of “Jack” the question on many minds was “Who is Jack?” We are Roy and Charlotte Hagelin from Fairfi eld, New Jersey, and we would like to…
Anagrams
anagram (an-a-gram) noun A word or phrase formed by rearranging the letters of another word or phrase. For example, Listen to Silent. verb tr., intr. To rearrange letters in such a way. To anagrammatize. [From New Latin anagramma, from Greek anagrammatismos, ana- (up, again, back, new) + -gram (letter).] Other examples: Clint Eastwood = Old…
Mindset
From an email of Andy’s school superintendent. A person with a fixed mindset · views intelligence as inherent · has a desire to look smart · has a tendency to avoid challenges · tends to give up easily · sees effort as fruitless · ignores constructive criticism · feels threatened by the success of…
Azimang
This is weird, but interesting! fi yuo cna raed tihs, yuo hvae a sgtrane mnid too Cna yuo raed tihs? Olny 55 plepoe out of 100 can. i cdnuolt blveiee taht I cluod aulaclty uesdnatnrd waht I was rdanieg. The phaonmneal pweor of the hmuan mnid, aoccdrnig to a rscheearch at Cmabrigde Uinervtisy, it dseno’t…
Happy Halloween
Happy Second Birthday Andy
And what a way to celebrate with the Red Sox win yesterday! Three years ago today Andy received Sofia’s stem cells. Here are some pictures from that day. Sofia visits Andy prior to her procedure: Sofia preop: Andy before receiving Sofia’s stem cells: Sofia after the procedure: Michelle Lanni, bag of stem…
1095 days ago
This is what I wrote 1095 days ago: 21:35 SLEEP21:43 DIAPER CHANGE22:04 VITAL SIGNS23:15 MED – Senna23:33 PUSHING – DIAPER CHANGE23:57 PUSHING – NAUSEA MILD00:23 SCREAMING – PUSHING – NAUSEA00:36 PUSHING00:54 PUSHING – DIAPER – NAUSEA01:16 PUSHING – DIAPER – NAUSEA01:26 PUSHING01:32 PUSHING01:37 PUSHING – TALKING “ME QUIERO DORMIR”01:55 NURSE IN ROOM CHECKS PUMPS01:57…
1095 days ago
This is what I wrote 1095 days ago: Doing well. We’re on day -4. Four more days to reach DAY ZERO. Day Zero is the day that stem cells are infused through the central venous line. He will most likely receive the cells between early afternoon and night of Friday Oct. 29th. His ANC today…