Doing well. Vamos Andy! Vamos Andy! We’re on day -5. Five more days until Andy receives Sofia’s cells. Andy’s weight today 17.2 kg. Still constipated, we switched to a new medication, I hope this one helps. Yesterday I asked Andy why did he think he was not going to the bathroom and he told me,…
+ English
Cells that know what to do + a printer = new body part
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1095 days ago
This is what I wrote 1095 days ago: Doing well. We’re on day -6. Six days left until Andy receives Sofia’s cells. Andy’s weight today was 17.3 kg. He’s still constipated, we havent seen any stool in 5 days, he got two more doses of Miralax (website). He’s still drinking his Pediatric EO28 Formula…
1095 days ago / Day -8
Doing well. We’re on day -8. Clinical Assistant came into the room at 8:00 am to get Andy’s weight (16.9 kg) and vital signs. Andy went back to sleep. We’re signed up with Father Robert to receive communion, so at around 9:00 am a Chaplain came into the room, we held hands, she…
1095 days ago / Day -10
This is what I wrote 1095 days ago: Doing well. This update comes when Andy has received 3 doses of chemo out of 20 (16 of busulfan and 4 of the other) according to the original stem cell transplant plan. He will receive 4 days of chemo of one type, then one day of rest,…
Conner needs platelets and the hospital doesn’t have any to give.
Conner’s Mom: Conner needs platelets this morning and the hospital doesn’t have any to give. We are hoping that they will have some by this afternoon. If you are able, no matter where you live, no matter what your blood type, please consider contacting the Red Cross in your area to find out where you…
Patience
Patience 1: bearing pains or trials calmly or without complaint 2: manifesting forbearance under provocation or strain 3: not hasty or impetuous 4: steadfast despite opposition, difficulty, or adversity
About skin
Andy’s “radiator” doesnt work. We’ve never seen him sweat (ectodermal dysplasia),
Prayers for Simon
Simon’s Mom asks for prayers. It is with a heavy heart that I write this and ask that everyone get down on your knees tonight and pray for Simon. After a grueling day of phone and e mail communications I just found out that our doctors are afraid that all of what Simon is…
NEJM article about the history of bone marrow transplants
Fifty thousand transplants last year worldwide. First transplant fifty years ago. Hematopoietic-Cell Transplantation at 50 Frederick R. Appelbaum, M.D. September 12, 2007, marked the 50th anniversary of E. Donnall (Don) Thomas’s initial report of a radical new approach to cancer treatment: radiation and chemotherapy followed by the intravenous…