Congratulations! Simon celebrates six months post transplant! This from Simon’s Mom: Celebrate today with us as it marks our six month post transplant on our calendar. We are very blessed to say we have managed to stay home, be together, watch Simons immune system heal and hopefully start to stabalize and stay strong and steady…
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Sweden approves embryo screening to save dying siblings
This via de AFP. STOCKHOLM, May 28, 2007 (AFP) – Swedish authorities have granted three families the right to screen embryos to create a child who can be a stem cell donor for a sibling with a deadly illness, officials said on Monday. The Swedish National Board of Health and Welfare has approved the highly-controversial…
The miles for miracles team raised 1.45 million!
For Children’s Hospital Boston WOW
Eight times around the sun!
And what a ride!
Cure 4 Rhys
Quest to find Rhys, 6 a bone-marrow donor May 14 2007 by Madeleine Brindley, Western Mail PATIENTS are dying because not enough people have registered as potential bone- marrow donors. Only about 10m people worldwide are registered as potential bone-marrow donors – 60,000 live in Wales. There is also a dire shortage of male donors,…
Giovanni is home – Dr. Sung-Yun Pai did it again
Giovanni is home! Dr. Sung-Yun Pai did it again. KNOCK ON WOOD. Story via Concord Monitor here.
Children’s Circle of Care
I spoke to 1,300 philantropists last Thursday at the Children’s Circle of Care Leadership Conference and Gala Dinner. More info here: http://www.cccmembers.info Definition of Philantropy: The origin of the word philanthropy is Greek and means love for mankind. Voluntary giving by an individual or group to promote the common good. I promised Andy that I…
Harvard Medical School
Dr. Geha invited us to one of his lectures last April 19th. to talk about our story to first year medical students. Dear Andres, On behalf of our department at Harvard Medical School and the First Year Medical students, I would like to offer my deepest thanks to you and your family for participating in…
I finished the Boston Marathon
Slowly but surely I finished the Boston Marathon. I had to deal with leg cramps since mile 10. I finished in 5 hours and 11 minutes. Number 20570 Victor also finished and he was faster, he finished in 4 hours and 36 minutes. Mark also finished in 5 hours and 7 minutes. Incredible experience! Right…
Prayers for Simon
Praying for Simon. This from Simon’s Mom, I cannot believe I am even posting this, almost a year to the date of us going home last year after transplant number one, I am asking that you pray long and hard for our son this weekend at one of the holiest times of the year. I…