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Simon still vomiting
This from Simon’s mom: We thank God everyday for the engraftment of 99% and keep praying it holds strong and steady. We had some of Simons vomitting issues come on strong the last two days with vomitting to the point of dry gagging while I hold him over the sink first thing in the morning….
JT no fever
We’re hoping for no fevers for JT and the calcium issue to resolve soon. This from cure4treebeard.org: Tomorrow is another big day. We need for JT to tolerate his feeds and be completely fever-free. We also need the calcium numbers to stay down on their own. If all of that happens, we may possibly be…
Jack @ day +309 back in the hospital with pneumonia
This from Jack’s Mom blog: Jack has pneumonia. This is not a result of the transplant however his medication is suppressing his immune system and that could be part of the reason why the cough ended up in pneumonia. Because of the snow storm on Friday Jack was unable to be transported down here to…
Body builder
THREE!
Three years old.
Dr. Orange will talk about NEMO at the IDF 2007 National Conference
We made our reservations to the IDF national conference in St. Louis, MO. June 28-30, 2007. Dr. Jordan Orange will give a talk about NEMO Friday June 29th. from 10:45 am to 11:45 am at the specific diagnosis sessions. These specific diagnosis sessions will provide individuals and families affected by each particular disease a better…
Pope speaks out against “designer babies” via Reuters
ROME (Reuters) – Pope Benedict on Saturday condemned genetic engineering and other scientific practices that allow people to select so-called “designer babies” by screening them for defects. In a speech to the Pontifical Academy for Life, a Church body of experts, the Pope also attacked artificial insemination and the widespread use of medical tests that…
Hyannis Half Marathon
I ran the Hyannis half marathon today. I used a knee strap for my left knee and it helped. Here is the route.
NEMO Patents
Would you patent a gene!!??? They have: Inhibition of NF-κB activation by blockade of IKKβ-NEMO interactions at the NEMO binding domain Abstract The invention includes compositions and methods for the selective inhibition of cytokine-mediated NF-κB activation by blocking the interaction of NEMO with IκB kinase-β (IKKβ) at the NEMO binding domain (NBD). The blockade of…