This from Jack’s Mom blog: Jack has pneumonia. This is not a result of the transplant however his medication is suppressing his immune system and that could be part of the reason why the cough ended up in pneumonia. Because of the snow storm on Friday Jack was unable to be transported down here to…
Family & Friends
Rhys newspaper article
I received the following news from Rhys today. The boy who faces nine months in an air bubble It is the modern equivalent of living in a sealed plastic bubble. And it is also the best chance of survival for a desperately ill five-year-old. Rhys Harris is to spend up to nine months living in…
Mark & Andy’s picture at the Children’s Hospital Trust website
Andy and Mark at the Childen’s Hospital marathon team kick-off December 14th, 2006. Visit this page here.
Prayers for Simon
Prayers for Simon who will be admitted for a second bone marrow stem cell transplant. Marriana his sister will be his donor. More details at his website www.cure4simon.org GO SIMON!
Happy Birthday SIMON!
Expect miracles! And here is Simon’s webpage and BLOG. Visit www.cure4simon.org!
Ryan David DeCosta
We met the DeCosta’s at Six West the stem cell transplant unit at Childen’s Hospital Boston back in September 2004. I received this article today from The Royal Gazette a newspaper from Bermuda. Bermudian to be Jimmy Fund hero By Elizabeth Roberts A boy from Bermuda who suffers from a severe immune deficiency illness is…
Descanse en Paz, Mario Fernández Paz
“Se oye una voz de lejos, que dice de malos modos, eso no le pasa a todos, solamente a los pendejos.” Mario Fernández Paz
Javier y Patricia Aja
Javier y Patricia Aja, Les mandamos todo nuestro cariño. No hay nada que pueda yo decir para remediar la perdida pero queremos que sepan que estamos pensando mucho en ustedes. Deseamos que sus Amigos y Familia los apapachen muchisimo! Hay mucho por hacer y espero conocerlos en persona pronto. Andrés L. Treviño
Orange Lab making headway on NEMO projects!
Dr. Jordan S. Orange said today, The lab is very busy – Making some headway on the NEMO projects. We have successfully subcloned a number of different NEMO mutations found in disease to try and learn more about how they specifically impair NF-kB function. More about Orange Lab here.
Cure 4 Cooper – Meet Cooper the Trooper!
Meet “Cooper the Trooper”. Cooper had NEMO deficiency and was transplanted May 2nd, 2006 with stem cells from his Dad. Read Cooper the Trooper blog here. Via Flora Bergeron.