Simon is having some blood pressure issues and they are concerned he is not getting enough blood through the aorta from the kidney to the heart. They can’t get the same reads on his leg and arm. He also has had a leaky IV for 2 days and now I’m wondering if he’s been getting…
Family & Friends
Cure 4 Jackson!
Jackson is a boy from Houston Texas with NEMO. He has spent more than 6 months of his life in the hospital with infections. He has ectodermal dysplasia with a primary immune deficiency, similar to Andy. He has had a lot of infections, mostly bacterial infections (sepsis and bacterimia) of gram negative bacteria (serratia and…
Abuelo Victor speech at St. John’s Northwestern Military Academy
My Dad wrote a very inspiring letter to his school, St. John’s Northwestern Military Academy back in December. The school invited him to talk about Andy & Sofia. His talk took place at the school’s chapel on January 27th. All the school was there… Here are some bulletpoints of his speech: The family carried on!…
Comments
I received the following comments today from Jackson’s Mom: You and your family are such an inspiration to us. Whenever I feel overwhelmed, I remember that you’ve already been through this, and I’m inspired by your positive outlook and your courage. And it’s mutual… More about Jackson soon.
Jack first ride home on the bus and the date is set
Jack had his first ride home from school on the bus! And the date is set for his stem cell transplant. Go Jack!
While looking back ’05
While looking back, I forgot to say that on June 18th. 2005 we walked with ‘Hannah’s Hopefuls’ Thank you Mom..
Sehe Bokmanee Bateuseyo
This one for Dr. Pai and her family. Sehe Bokmanee Bateuseyo .
Hey Mom, I have another reader!
Just received the following comment, Andres – You do such a fantastic job putting relavent information on Andy’s web site! I learn so much here! This NY Times article is exactly what we are dealing with. Our son has been rceiving IVIG for 14 years and we have amassed many bills like the article describes….
Chuk Sung Tan / Sung Tan Chuk Ha
This one for Dr. Pai and her family, Chuk Sung Tan / Sung Tan Chuk Ha .
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Subscribe to the Andy Blog and receive an email notifications to alert you of a new post. When you subscribe you will receive email notification alerts when any of the categories at The Andy Blog is updated. The Andy Blog has the following categories, Andy’s Update – News about Andy after his stem cell transplant….