NEPIN stands for The New England Primary Immunodeficiency Network. A group of family and friends of patients with Primary Immunodeficiencies. An independent non-profit organization formed under the umbrella of the Jeffrey Modell Foundation. Works in cooperation with the Immune Deficiency Foundation in the New England Area. The Graziano family organize NEPIN events and they educate…
Family & Friends
Padre Toño lives IMMUNE
Padre Toño was wearing his live IMMUNE wristband on mass today. Strong contender for the Action Shot Live Immune wristband iPod contest, details here. More pictures here.
The book
I’m writing a book! Paulina remembers more things than I do, she has a better memory(among lots of other things). I constantly go to Paulina with questions looking for more details so when I say ‘I” it really means ‘We’. I (we) started to write formally around February 23rd. 2005 after Andy’s last hospitalization. I…
Kelli Cole sends her medal to Andy
Kelli Cole sent her Boston Marathon medal to Andy. “He has earned it for all the ‘marathons’ he has gotten through! He definitely helped me get through this years race as well.” Thank you Kelli!
The Orange Family and the wear orange liveIMMUNE wristband
Audrey and Marlaina: Dr. Jordan Orange:
Kelli 4 Andy Party @ the L street Tavern
Pictures from the party: We had a great time at The Party! A lot of people showed up tu support Kelli’s Run for Andy. We met Kelli’s parents and fiancee. We were also very happy to see our friends from 6W. First time Paulina and I go to a bar in 5 years and drink…
Running for Andy @ Children’s News
Kelli and Andy on the April lissue of Children’s News! Published monthly by the Department of Public Affairs for Children’s Hospital Boston employees, staff, volunteers and visitors. Running for Andy Children’s Hospital Boston’s Kelli Cole, RN, has been running the Boston Marathon for the past three years. But this year the race is more than…
Doctor Roberto Kretschmer descanse en paz
Me acaban de informar que el Doctor Roberto Kretschmer murió el día de hoy a las 5:45 am. El Dr. Kretschmer era nuestro Capitán, así nos lo dijo él: “Yo soy su Capitán y vamos a sacar adelante a éste niño”. Le salvó la vida a Andy en varias ocasiones y en el camino me…
Estimado Dr. Kretschmer,
Marzo 16, 2005 Capitán, Con gusto le informo que el día de hoy Andy fue a la escuela con un sistema inmunológico nuevo. Y le encanto!! Quien iba a pensar que éste niño una mutación en en el exon 4 de (NEMO) Nuclear Factor Kappa B Essential Modulator; con más de 600 días en el…
Sister Carlotta
Sister Carlotta Gilarde told me today on the hospital elevators: “You’re getting an overdose of parenthood” Sister Carlotta has followed Andy’s story since we arrived to Boston.