Hospitals
NECN interview – CHB Orphan disease center
(Ally Donnelly, NECN: Boston, MA) – A Boston hospital has received a grant to establish the world’s first-ever center to study orphan diseases. An orphan disease is any disease or disorder affecting less than 200,000 people in the United States. Because the disorders affect so few, researchers have a difficult time getting government or private…
Well: What Your Doctor Really Thinks via NYT
Well: What Your Doctor Really Thinks By Tara Parker-Pope Published: June 25, 2008 Doctors share their frustrations and insights about the health care system.
I will teach at Harvard today!
I was invited by Janet Porter, COO of Dana Farber to teach about patient decision making at Harvard. The course is HSPH Marketing Course. This graduate level course has 30 students in it. They come from all over the world to earn their MHA in the School of Public Health. The first two weeks of the course…
Bodymaps – COOL!
Maura & Anne Marie at Andy’s school
Maura & Anne Marie are nurses at Six West, the stem cell transplant unit at Children’s Hospital Boston. They visited Andy’s school last Tuesday March 11 to talk to his classmates about his transplant. It was a great presentation. Thank you Maura & Anne Marie! Andy feels more confident. Andy’s teacher reminded me that I’m…
I will talk here today
At the Children’s Hospital Board of Overseers Annual Luncheon. 5 min talk about “Extreme parenthood” View Larger Map
I’m glad to be a council/sel member
‘Councils’ have offered ‘counsel’ for 10 years The word “council” means “an assembly of persons called together for deliberation or discussion,” while “counsel” means “advice or guidance.” For the past decade, the Patient and Family Advisory Councils (PFAC) have illustrated both definitions. Since their founding in 1998, these groups have left their mark throughout Dana-Farber…
Wrong-site/Wrong-patient errors
Wrong-site/Wrong-patient errors In a recent incident at DFCI, one staff member prepared the room for a bone marrow biopsy and a second staff member accepted and labeled the specimen. Because the entire care team had not taken a time out for final verification, the second staff member accidentally mislabeled the specimen with the wrong patient’s…
Drake’s Story via Children’s Hospital Trust
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