Jack had his first ride home from school on the bus! And the date is set for his stem cell transplant. Go Jack!
NEMO Gene
A test to screen patients with NEMO
Jordan S Orange and Raquel P. Deering just published a new article at the Clinical Vaccine Immunology journal where they talk about a test to evaluate primary immune deficiencies like NEMO where cells are unable to recognize certain disease-producing micro-organisms. Just imagine! Andy had to deal with infections for two years before finding his diagnosis,…
Dr. Orange article cited by 28
Dr. Orange’s article published back in June 2002 at the Journal of Clinical Investigation has been cited twenty eight times according to Google Scholar. The title of the article was Deficient natural killer cell cytotoxicity in patients with IKK-gamma/NEMO mutations. Andy’s cells were used for that article. Find all the versions of the article here….
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Virtual NEMO Aquarium
I had to have virtual nemo fish aquariums on this blog..
Happy birthday JACK!
Jack turns THREE! Picture at the cure4jack blog. Congratulations!
CURE 4 JACK!
A month ago I published here the story about Jack Hagelin from New Jersey who also has a NEMO mutation. Since then I’ve been in contact with Roy and Charlotte, Jack’s parents and I offered them a website for Jack hosted on a internet server thanks to the generosity of the company I work for…
David Baltimore awarded honorary degree at Harvard
David Baltimore (Nobel Prize 1975) discovered the NEMO gene in 1980. NEMO comes from the words Nuclear Factor Kappa B Essential Modifier. In part thanks to David Baltimore we found Andy’s diagnosis and we thank him for that. Here’s what Harvard wrote about David Baltimore: One of the world’s most distinguished and influential biologists, David…
The book
I’m writing a book! Paulina remembers more things than I do, she has a better memory(among lots of other things). I constantly go to Paulina with questions looking for more details so when I say ‘I” it really means ‘We’. I (we) started to write formally around February 23rd. 2005 after Andy’s last hospitalization. I…
Gene Therapy Is Facing a Crucial Hearing @ The New York Times
More about gene therapy.. Interesting data: By GARDINER HARRIS; Published: March 3, 2005 The French study was once hailed as one of the first breakthroughs in gene therapy: 10 children suffering from a rare immune disorder were largely cured. But three of those children have since developed leukemia, and one of the three has died….