I met Mary K. Russell today, mom of Catherine Lyons now 13 who is 10 years in Remission w/ Stage IV Neuroblastoma! Catherine had 2 stem cell transplants. Mary K. Russel supports families by bringing dinner every Sunday to the transplant unit at Children’s. She has been doing this for 10 years! You can read…
Stem Cell Transplant
Charlie Article @ The Guardian
I read about Charlie @ BBC on July 27th, 2004. At that time he was around day 25 after transplant. Today, three months later, The Guardian reports “Boy cured by ‘designer baby’ cells”. A six-year-old boy has been cured of a rare blood disorder after receiving blood cells from a baby brother born to save…
Physical Therapy
Andy had physical therapy on his bed today. Jillian LeBrun, Physical Therapist Assistant helped him (and Teddy) to move his legs, arms and upper body. ATF
We’re ready! – New Room 6W
We’re on Room 613 Andy Trevino Children’s Hospital Boston 6W Room 613 300 Longwood Avenue Boston, MA. 02115 USA
Dr. Nicholas Haining – Attending Physician
W. Nicholas Haining, BM, BCh Instructor in Pediatrics, Harvard Medical School More here.
Dr. Nicholas Haining – Attending Physician (for the weekend)
W. Nicholas Haining, BM, BCh Instructor in Pediatrics, Harvard Medical School More here.
Dr. Ian Thornley Attending Physician + Plan
Talked about a plan for stem cell transplant conditioning with Dr. Ian Thornley. Monday Oct. 18th – Start Conditioning Wednesday Oct. 27th. – Transplant Day Sofia should visit the clinic again for donor screening. By that Oct. 18th we should have 2 negative PCR CMV cultures. ATF
Music
Here’s a list of music played on Room 606 since we got here: Play Count = 25 Unaccompanied Cello Suite No. 1 in G Major, BWV 1007: I. Prélude; Bach: The Cello Suites Play Count = 24 Unaccompanied Cello Suite No. 1 in G Major, BWV 1007: III. Courante; Bach: The Cello Suites Play Count…
Dr. Ian Thornley Attending Physician
Ian Thornley J., M.B.B.S.
A Tasmanian couple PGD for PID
An Australian couple who created medical history and sparked a storm of controversy about their decision to have a “designer” baby to save their seriously ill son have spoken out about their choice in a new film. The Tasmanian couple, known only as Stephen and Leanne, welcomed their life-saving baby boy, CJ, last month. CJ…