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cure4treebeard.org

Posted on October 27, 2006 by Andres Trevino

Go Jacob!!
www.cure4treebeard.org

Jacob Treebeard Brown was born on August 18, 2003. Shortly after birth he was diagnosed with a very rare genetic condition called Ectodermal Dysplasia with Immunodeficiencies, also referred to as NEMO.
For the past three years, Jacob has been receiving daily antibiotic treatments, IVIG therapy and has led a restricted life away from most children, crowds of people, and anyone who is sick in an effort to reduce the risk of life threatening infection.
In the last few months, Jacob’s doctors and parents have determined that a bone marrow transplant could change everything. On November 30, 2006, Jacob will enter the next phase of his journey at Cincinnati Children’s Hospital by undergoing a bone marrow transplant. This is a high-risk procedure, and the recovery process will be long and difficult for Jacob, Brian, Jodi, and Justice; but if it’s successful, Jacob will be cured. Without a transplant, there is no earthly hope for a cure.

Category: + English, NEMO Gene

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