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Rhys going home! Day 48

Posted on December 7, 2007 by Andres Trevino

This from Kevin, Rhys Dad:

Tomorrow,,,,  Rhys comes home……

I find it weird to even write?  After what is considered a short period for a complex procedure? 48 days plus 8 days chemo…  I left him tonight and said good bye to some of the Nurses, I was actually a bit emotional.  After hating going in and following procedures, and being kooked up in a small room watching your child go through a living hell you kind of get used to it and have comfort in the fact that if something goes wrong you have the best of the best medical team close at hand.  I have nothing but admiration and envy of the staff there, even though,  as always I have not been the easiest to get on with! 

There is still a long long way to go, but at this moment in time Rhys is cured of NEMO and everything is going Great, but that is down to one person, RHYS, he is the most determined, single minded, uncompromising child I know, and I am proud to call him my son!!

 

More at www.cure4rhys.org 


Category: + English, Family & Friends, NEMO Gene, Stem Cell Transplant

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