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You could be a match for Jackson

Posted on March 10, 2006 by Andres Trevino

Jackson is in the news!
ABC News Channel 13 Houston talks about Jackson and his family today.
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Here are some highlights of the story:

You could be a match for Jackson by Christi Myers
Imagine learning that your baby has a genetic mutation that will keep him from living to be an adult. Now imagine that there’s only one cure, but you can’t buy it. You have to depend on a stranger.
“Jackson’s immune system does not work basically at all. There’s very little function that he has,” said Brenda. “He’s basically like the bubble boy.”
“With the nemo mutation, there’s only 14, 15 people in the world that have that mutation that Jackson has and no one has ever survived past age 20 with this mutation,” said Brenda.
A bone marrow transplant is the only treatment. It could give Jackson an immune system.
“This could be a complete cure,” said Brenda. “He could live a completely normal life.”
But no one in their family is a match. They’re spending their savings trying to have another child who might be a match.


Read the complete story via ABC News 13 Houston here.
The story has links to www.cure4jackson.org.
You can also help by purchasing the “Action for Jackson” wristbands and the “cure4jackson.org” Tshirts.
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Category: NEMO Gene

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